People affected by dementia In the East Midlands are experiencing crippling loneliness and are struggling to cope during lockdown, a survey by Alzheimer’s Society reveals, but the charity is helping to alleviate the anxiety many face by making thousands of ‘welfare calls’ to provide support and information.
In the East Midlands more than 6,000 calls have already been made by staff and volunteers determined to reach out to those in need.
Alzheimer’s Society’s funds have been badly hit by the pandemic, meaning it now faces a potential drop of £45 million in income.
This comes at a time when demand for its services has skyrocketed, leading it to launch an Emergency Appeal to raise vital funds.
For its latest survey, the charity questioned 880 people either living with dementia or caring for someone with the condition.
More than three quarters (78%) * said the coronavirus pandemic has made them feel more lonely or isolated than before, with around half (37%) revealing they feel significantly lonelier and more isolated.
Jean Eastwood, of Nottingham, who has Alzheimer’s and lives alone, said: “Because of living on my own the lockdown has affected my daily regime by restricting meetings, gatherings and my volunteering activities. It has also affected my memory. I am forgetting to turn off electrical items such as the grill, the oven and the hot water switch in the last few days. The grill and oven were notable by hearing motor noises later. Luckily my gas hob turns off automatically when the lid is closed.”
There are an estimated 850,000 people living with dementia in the UK, including more than 60,000 in the East Midlands. However, the condition, already the UK’s biggest killer, has been even more deadly during the current pandemic – claiming more lives and leaving many feeling fearful and vulnerable.
Steve Hampson, Head of Region for Alzheimer’s Society in the East Midlands, said: “Coronavirus has turned life upside down for the thousands of people affected by dementia; many are scared, lonely and struggling to get the help they desperately need.
“During the pandemic, our frontline team has been raising safety alerts, delivering regular welfare calls, and supporting those who have nobody else to turn to through our Dementia Connect support line.
“They have dealt with matters of life and death. But thousands more need help and with Alzheimer’s Society facing a drop of £45 million this financial year due to the pandemic, this lifeline is at risk, which is why we are asking people to donate to our Emergency Appeal.”
The charity’s recent survey follows research it funded at the University of Exeter, known as the Improving the Experience of Dementia and Enhancing Active Life (IDEAL) programme.
The large-scale study is one of the first to look at loneliness in family carers and people living with dementia. Nearly two thirds of family carers (62%) and around a third (30%) of people with dementia reported loneliness before lockdown measures were put in place.
An estimated 95% of people with dementia are over 65 and many live with other underlying health conditions, making them more vulnerable to the virus.
Emerging data from one large study also says that risk of death is 39% higher among people with dementia.
The neglect of the care sector during coronavirus also significantly impacts people with dementia who are the main recipients of social care, with 70% in care homes and, 60% relying on homecare having dementia.
Unsurprisingly, around half of survey respondents (46%) say they are struggling to cope in the current crisis and one in seven (14%) admit they are finding it extremely hard to cope with daily life.
Around a third (34%) say they are most worried about not seeing family and friends, while over a quarter (26%) are most concerned about dementia symptoms worsening and one in eight (13%) say their biggest source of anxiety is around what the future holds.
Alzheimer’s Society’s Dementia Connect support line has seen over 7,000 calls in the last two months.
Meanwhile, between 23 March and 1 April, when lockdown measures were put in place, the charity’s online support community Talking Point saw a 550% increase in people joining.
Last month saw more than double the number of registrations (1113) compared to March 2019 (526).
The charity’s Emergency Appeal has been backed by celebrity supporters, including Jonathan Pryce CBE, Lesley Manville and Fiona Phillips. Alzheimer’s Society is also calling for people to sign up and become a Dementia Friend.
This free online Information Session explains more about how dementia affects a person and armed with that understanding, the ways people can help those living with the condition during the pandemic, like having a chat by video call with a family member or delivering shopping for a neighbour.
Donations to Alzheimer’s Society’s Emergency Appeal can be made at alzheimers.org.uk/coronavirus-appeal. Alzheimer’s Society Dementia Advisers provide emotional support and practical information on how to stay safe, active and social during this difficult time. The Dementia Connect support line (0333 150 3456) is open seven days a week.