Stanley mum shares the story of her daughter Alana who has a rare genetic condition

Local mum Megan Magee from Stanley village spoke to Paul Stacey about her daughter Alana who has Borjeson-Forssman-Lehmann syndrome (BFLS), a rare generic condition.

Megan shared her story and explained that the family have started fundraising for a trip to make memories together, in light of Alana’s life-limiting condition.

Broadcast on Erewash Sound Breakfast Show, Friday 19th April 2024.

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